Tubefish.net - No Answers, No Cure: Cystic Fibrosis

rogerthealien359

( 7 days ago)

Things sure are different in America, here in Ireland all our medical care & medicines is cover with a medical card. If not it would cost up to €80,000 a year for it. The big problem we have is organ donations there not enough people donating. I myself is waiting 4 a double lung transplant being on the waiting list now nearly 2 years I'm 27 witch is a gr8 age 4 some1 with CF but I know if I don't get them soon I will not make my 30th birthday!!

di56	( 15 days ago)
This definitely hit close to home. My neighboor/best friend has CF. I know all the statistics but to hear someone that deals with tons of cases everyday actually say it out loud made it that much more real. I only hope that one day CF will stand for Cure Found.

teiubesc36	( 58 days ago)
wow that was terrible,as a doctor she should help you,i don,t agreed with you,is better take 2-3 hours to "be healthy" cause is important to fight,instead of giving up.

Ensonamata	( 71 days ago)
I'd feel more inclined to listen to my doctor if she didn't damn-near kill me a couple months ago...I've made it this far, and frankly death is better than taking 2-3 hours out of my day to "be healthy."

teiubesc36	( 71 days ago)
but you need to take good care of you,and as you know is very important to take the medication not when you feel like it... but as doctors tell you to do:):)

Ensonamata	( 72 days ago)
I'm pushing 20.

teiubesc36	( 72 days ago)
how old are you?

Ensonamata	( 76 days ago)
I have CF and I feel so bad for all these kids....I must have a very weak case, because I live life like a normal adult/teenager. I get out, I'm relatively healthy, and I only take my medication when I feel like it...

teiubesc36

( 85 days ago)

was trough gregory that i became aware of C.F was the first time i heard about this desease.for me greg will be allways a role model he did fight with everything he had. he never give up of fighting,not only to breath well,but also for is dream... is wonderfull voice will remain forever in the hearts of those who admired him... there is an association with is name who keeps the fight against C.F REST IN PEACE

teiubesc36

( 85 days ago)

only this year i saw a documentary were they did talk about C.F,a portuguese tv channel made a documentary about people who suffer from C.F and how they live day by day with the desease,some of them were lucky to be send to a spanish hospital to make a lung transplant,one of them is now 38 years old and she,s doing fine,in my country lung transplant are totally a disaster,if the people who as it,don,t go to spain they will die,cause my country is helpless when cames to threat people with C.F :((

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